Hi, I have recently been reading your very informative book on IC.
I have had this problem for 3 yrs, was just diagnosed with IC and Hunners ulcer. I've taken meds and had 12 instillations done, but still have symptoms left.
Is it possible to have this diagnosis with NO FREQUENCY, URGENCY but only with pelvic burning, pelvic pressure and some vulvadynia and discomfort and irritation after urination, no pain with sex? Do you think it is still the IC? Scared to start your specific recommended antibiotics with no confirmation of culture results. I'm 39 y.o. with 2 kids, Nel. VA.
I am inclined towards thinking that Nel does indeed have true IC. Its the Hunner's Ulceration diagnosis and the fact that all the ghastly medical treatments and options have failed. This is so true of most TRUE IC patients. Nothing has worked or made any difference.
Although in my books I am specific about TRUE IC symptoms, nothing is 'writ in stone'!
It is perfectly possible to have any of the organism sub-species which will make a difference to some womens' symptomatology.
Nevertheless, Nel has a horrible range of clearly specified symptoms including bladder ulceration, pain after urination, pelvic pressure indicating infection processes at work and so on.
This is good enough for me to say that not only will she find lots in my IC book to learn and practise, including her husband and herself 'sharing' the organism and transmitting it one another, but also the treatment and recovery plan for both of them so vital in removing the organism and allowing the bladder lining to eventually re-form as healthy.
Assisting and recovering a healthy bladder lining, as I say repeatedly, may take weeks , The bladder has been seriously ill, you have to look at it like a road crash. Do you expect broken bones to heal and move 24 hours later?? Of course not. My book is wonderfully helpful on all this.
I would say that Nel ( and her husband as a carrier) does have TRUE IC. She and he, therefore need to follow meticulously all the self help rules in my other books AS WELL AS the specific treatment and recovery plan for IC.
I myself had an episode of a sub-strain some years back, but not thinking IC at all, and without pain or frequency but just a sticky discharge, I finally got tested at the lab in London and sure enough I had a sub-strain, took the only antibiotic that would kill it and got better.
This organism only comes, as I repeat in the books, from sex or impregnated lavatory seats.
Ah!! another blog, another time!
Angela Kilmartin
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