It happens regularly in my mailbag. I’m having another ’bout’ of Interstitial Cystitis. NO. You don’t get ’bouts’ of I.C.
Interstitial Cystitis is a 24/7 event.
You might get a flare-up or worse days than others but with true Interstitial Cystitis you do not get ’bouts’ of it. It is always there, never goes away and many victims find life impossible to live. Pain is the dominating factor and its this that victims cannot cope with, its utter misery. Pain is a signal of something not right. What, in the bladder, is ‘not right’? !
‘Bouts’ of IC don’t exist.
BUT ‘Bouts’ of cystitis and urinary tract infection do exist and are a great plague upon millions of women. You have to fully understand your body and its illnesses. Don’t say you are suffering from something when you are not. My book gives full differences between these two forms of cystitis.
But the doctor says that’s what I’ve got!
Not always correct though, I’m afraid. I’ve written a lot on why this is. Often its down to you not providing a strong enough sample of urine for the lab to find enough bacteria to classify as a technical bladder / urinary tract infection. My book tells you more and how to provide a strong enough sample. Another major answer is that the doctor can’t think of anything else to tell you so comes up with this ‘in vogue’ diagnosis and thinks you’ll be satisfied with a referral to the nearest urologist. There are more answers in my book, The Patient’s Encyclopaedia of Urinary Tract Infection, Sexual Cystitis and Interstitial Cystitis.
Both sorts are bacterial in origin ( though there is a non-bacterial cystitis, too.) I have maintained for years that I.C. is bacterial. Even Professor Malone Lee in North London puts most if not all of his patients on long-term antibiotics. Now why would he do this unless he felt there was bacteria present? The Royal Free doesn’t have a Mycoplasma testing bench, nor does St Bartholomew’s Health Trust neither do any hospitals in the country. Its very pricey to set up and maintain.
Look it up online. Its tinier than other bacteria and needs special equipment to search and locate it in the bladder. In various forms it can inhabit the bladder and the vagina burrowing in and making reddened areas of inflammation. My book has lots of information on it and it is this micro-organism that I know is responsible for so-called Interstitial Cystitis. There is only one lab in all of London, and its private, that tests for Mycoureaplasma in urine and vagina. A medical referral is necessary.
Where does Mycoureaplasma come from?
Contaminated sex is where it starts out. Then it can get transferred by a penis onto lavatory seats as well. It is rife in the population, absolutely rife. Sleep around and your life might be ruined as many IC lives are. Just once with a contaminated partner is all it will take. Married people, seemingly faithful, might have had a one night stand. That’s all it takes.
Another diagnosis of I.C. is often given to those women in Middle Age. Nothing sexual. Its loss of ordinary hormones and these can be quickly and easily be replaced to make the shrinking perineum and vagina much more comfortable.
Unfortunately, gynaecologists and urologists don’t like crossing their borders but a uro-gynaecologist will. Talk HRT, try out and monitor how you get on. At 76, I would not be without my oestrogen vaginal cream.
All my works are available from this website or Amazon worldwide. www.angelakilmartin.com
Angela Kilmartin, March 2018